Thanks to all participants in todays conference

 
 
On behalf of the Department of special needs education, The national library, Norwegian network for Down syndrome and Norwegian network for research on Down syndrome I have the two last days had the pleasure to welcome about 100 researchers, parents and practitioners from America, across Europe and from the south to the north of Norway to the conference “Communication in individuals with Down syndrome – which future does the research predict?” In addition 108 computers clicked in on the streaming day 1 and 122 on day 2 which means that at least a mean of 215 people possibly take part each day.

It is the first time in the history that an international research conference within this area has been hosted in Norway. The time of this conference was not chosen randomly. Here in Norway we have had a huge debate about Down syndrome over the recent years. First, the birth rate has decreased and the number of abortions has increased remarkably. Second, the minister of health approved the use of the blood test NIPT (Non-Invasive Prenatal Testing) and third a new PhD student in philosophy named Aksel Braanen Sterri published a disputed media article claiming that people with Down syndrome will never be able to live full worthy lives. The article was published without justification and research evidence.

Lack of evidence may also be a challenge in the field of language and communication, which is one of the cardinal areas of difficulty for individuals with Down syndrome. There are several challenges related to existing research on Down syndrome; few studies, especially few RCT studies have been conducted, there are often challenges related to comparison groups or the absence of a comparison group. Sample sizes are often small, and age spread samples are common. Further there are large variations in skills and development in this clinical group - the within group variation is even larger than the within group variation in typically developing children.

Of course not all studies suffer from such limitations mentioned above but the aspects mentioned are common challenges in the research field. And it is timely to wonder why we are not making greater steps to address quality in the field. There may not be one main explanation for this but rather a set of different aspects may have influenced the situation.  In the educational Program from  the Research Council of Norway there have been few projects on Down syndrome. Without looking into the firmer applications it is easy to suggest that this has to be on the research council and their prioritizations. However, this year I have been on the panel in the Swedish research council and there have hardly been any applications related to Down syndrome at all. The prevalence of the syndrome may explain some of the absence; since the prevalence is low the studies are often expensive to run so the economy may be another related explanation. Also, the prestige related to doing research within this field is lower since the relatively low prevalence makes the publications less likely to be cited and thereby strengthen the researcher’s track record. However, over the last decades there has been a remarkable change in the field. The number of intervention studies has increased and as Silje Hokstad talked about in her speech the implementation quality in these studies has also been given more attention.

Still there are challenges in the field, there are researchers that are genuinely passionate about this population and that also conduct high quality research.  In addition several resourceful parents and practitioners exist. The 90 minutes from practice session today gives good examples of that. Still parents and practitioners usually have no research results to report, knowledge development relies on an interaction between researchers, practitioners and parents (and child) and therefore to value each other is important for real knowledge development.

This conference aimed to present research related to communication and language development / difficulties in individuals with Down syndrome; one section was devoted to reading development and reading instruction, as well as dialogic reading and the quality of pictures in the picture books. Another focused vocabulary and grammar as well as communication and language intervention. Finally, also results from treatment of motor speech disorders were presented. The ppt from both the section of research and practice will be published on our blog shortly 

The conference also served as an arena where an international small research community including parents and practitioners were updated on the latest research and discussed the studies presented, both related to content and methodology. Contacts across borders were linked to ensure a stronger international research community within this field in the future.

I am grateful to all speakers, participants and live streamers, NNDS, and to the DSL+-team for their positive contributions and for making this conference successful. A great thank to the National Library for hosting the conference, for coffee, tea and a lovely lunch, as well as for technical support and live streaming the talks. Especially thanks to Johanne Ostad who led us through the program. Many thanks also to the municipality of Oslo that hosted the lovely conference reception and finally, I want to thank the research council of Norway for granting the conference.

Many thanks for making these two fantastic days!


Conference on Communication in Individuals with Down Syndrome

The University of Oslo (the DSL+ project), in cooperation with Norwegian network for Down syndrome, the Norwegian Research Forum on Down syndrome and The National Library of Norway, invites you to an international conference on Down-syndrome and communication. The conference will be held at The National Library of Norway 31.08.17 and 01.09.17.


Illustration: Colourbox








Program

AUGUST 31st


Time
Talk
09.00
Registration
10.00 – 10.30
Welcome
10.30 – 11.30
Charles Hulme: Interventions to improve reading and language skills in children with Down Syndrome
11.30 – 12.00
Silje Hokstad: Findings from a systematic review of language interventions for children with Down syndrome
12.00 – 13.00
LUNCH (registered participants only)
13.00 – 13.30
Christopher J. Lemons: Literacy Instruction for Children with Down Syndrome
13.30 – 14.00
Kari-Anne Næss & Liz Smith: Vocabulary, Phonological Awareness, and Letter Knowledge Promote Reading in Children with Down Syndrome
14.00 – 14.30
Liv Inger Engevik, Kari-Anne B. Næss, & Bente Hagtvet: Cognitive Stimulation of Pupils With Down Syndrome: A Study of Inferential Talk During Book-Sharing
14.30 – 15.00
BREAK with picture book exhibition
15.00 – 15.30
Ingrid Holmboe Høibo: Quality in newer wordless picture books
15.30 – 16.00
Sara E Wood, Jennifer Wishart, Claire Timmins, William J. Hardcastle, & Joanne Cleland: The use of electropalatography (EPG) in the treatment of motor speech disorders in children with Down’s syndrome: A randomized controlled trial.
16.00
Conclusion
18.00
Reception Oslo City Hall (registered participants only)



SEPTEMBER 1st


Time
Talk
09.15 – 10.15
Ann Kaiser: Toward a Phenotypic Specific Early Communication Interventions for Children with Down Syndrome
10.15 – 10.30
BREAK
10.30 – 11.00
Liz Smith, Silje Hokstad, & Kari-Anne Næss: A systematic review of language interventions for children with Down syndrome: what are the most effective approaches?
11.00 – 11.30
Bernadette Witecy: Language comprehension in children, adolescents and adults with Down syndrome
11.30 – 12.00
Field of practise in 90 min
Line Avers: When working on speech - can we be more concrete?
Nina Skauge: New booklets make the difficult a little easier          
12.00 – 13.00
LUNCH (registered participants only)
13.00 – 14.00
Field of practise in 90 minutes, cont.
Karianne Hjørnevik Nes: Inclusive education in fifth grade public school with language as a basic skill
Britt-Hege Wærnes: Reading and learning intervention for children with Down syndrome from kindergarten to first grade.
Henrik Wærnes: Systematic speech intervention with the Karlstadmodel stimulation plate- a practice story
Karen Knudsen Synnes: Why sign-language is a key to communication and participation to people with Down Syndrome
Ellen Romstad: From reading and writing to communicating – in and outside the classroom
14.00 – 14.30
BREAK with picture book exhibition
14.30 – 15.00
Kari-Anne Næss, Egil Nygaard, Johanne Ostad, & Sol Lyster: Vocabulary in children with Down syndrome
15.00 – 15.30
Anne-Stine Dolva, Marit Kollstad, & Jo Kleiven: Language and communication characteristics - teens as informants in research
15.30 – 16.00
Conclusion and the future in Down syndrome research

My Academic Summer - Randomisation, Confidence Intervals and Forest Plots


Today I visited the Psychology Departement at Cardiff University for a crash course in statistics with Craig Hedge, PdD in experimental psychology. Craig is currently working on a Meta-analysis on reliability studies in cognitive control and is the go to guy when you are struggling with statistics. Liz and I had a few specific requests; we wanted to know how Craig carries out randomisation procedures using MatLab, we wanted him to explain confidence intervals and when to use them and we wanted to learn us about forest plotts. 






Randomisation: Craig has previously carried out the randomisation procedures for the DSL+-project. When carrying out a Randomised Controlled Trial (RCT) the participants are randomly placed in either a experimental group or a control group. The process of group placement is called randomisation and should always be done by a third party not involved in the study of question. Neither me nor Liz knew how this procedure was actually carried out, and therefore asked Craig to show us. Using MathLab this turns out to be a relatively straight forward procedure. Knowledge that might come in handy one day!

Before it got complicated...


Confidence Intervals: Next we wanted to understand confidence intervals - what do they tell us and when should they be used? Confidence intervals are used to describe the amount of uncertainty associated with a sample estimate of a population parameter. People interpret them as a measure of precision - in principle if you were to run an experiment 100 times a 95% confidence interval would contain the "true" population value in 95 of those experiments.

If you use IQ as an example the average of the population is 100. If you tested the IQ of a sample of 30 people you might get a confidence interval of 93 - 103. If you repeated the procedure with another sample of 30 people you might get a confidence interval of 98 - 110. If you did this 100 times, you would expect the confidence interval to contain the true value (100, population mean) 95 times. The remaining five times would then have a confidence interval not containing the true value (100, population mean), e.g. 101 - 111.

You can read about confidence intervals in the article; The fallacy of placing confidence in confidence intervals (Morey, Hoekstra, Rouder, Lee and Wagemakers, 2016).


The face of confusion....


So how can confidence intervals be used? One example is when presenting results from a meta-analysis using a forest plot. Two things to take from this is a) if the confidence interval goes through the vertical "0" line the results of the studie is non significant and as such b) if the confidence interval is on the right side of the vertical "0" line the results of the studie is significant. The diamond in the bottom is the average mean of all the included studies. 

Illustration image, Wikipedia commons


Thanks to Craig Hedge for having us visit!


- Silje and Liz -



My Academic Summer


As I wrote about in one of my blog posts a while ago, I have been so fortunate as to receive a travel grant from The Ryoichi Sasakawa Young Leaders Fellowship Fund (SYLFF). This grant is used for a two-week research stay at the University of Bristol, England. As I write this I am at the beginning of my two-week stay in England and I have two exiting and eventful weeks ahead of me. Amongst other things I will be presenting the DSL+-project focusing on my masters project on implementation at the School of Experimental Psychology at the University of Bristol and at the Departement of Psychology at Bournemouth University.  

The First Day of My Academic Summer - Cardiff Bay


As such this summer will be something out of the ordinary! 

I will keep you posted...

With the best wishes for the summer

 - Silje -   


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